My oldest daughter has the following conditions:
Dysplastic Mitral Valve with slight regurgitation
Chiari 1 malformation
Ehlers Danlos Syndrome-Type 3-Hypermobile (due to Ichthyosis FLG gene mutation)
Dysautonomia-Postural Orthostatic Tachycardic Syndrome
Chronic Fatigue Syndrome
Fibromyalgia
ADHD
Obsessive Compulsive Disorder
Scoliosis
Obstructive Sleep Apnea
Anxiety
Memory Loss
My youngest daughter has the following conditions:
Robertsonian Translocation Down Syndrome (15:21)
Ehlers Danlos Syndrome-Type 3-Hypermobile
Hypotonia
Dysautonomia-Postural Orthostatic Tachycardic Syndrome
Hypothyroidism
Mitral Valve Stenosis with mild regurgitation
Obstructive Sleep Apnea
Intellectual Disorder
Mental Retardation
Communication Impairment
Tricuspid Valve regurgitation (slight)
Congenital Heart Defects that were fixed by open heart surgery:
Open PDA (Patent Ductus Arteriosus)
Large ASD (Atrial Septal Defect)
Complete AV (Atrioventricular) Canal Defect
We keep getting denied disability because they say we make too much. My children's medical costs are getting more and more. They don't take into account the medical costs that insurance doesn't pay for and we have to pay up front and out of pocket. What can I do???
Hi,
I can try to help you with that. It’s possible, but many children are disqualified due to technical, not medical reasons. Before applying on behalf of a child, you will need to know if you earn too much income to qualify, as Supplemental Security Income (SSI) is needs based and only those with limited income and resources will qualify.
As your child isn’t making any income, the SSA will evaluate you and/or your spouses’ monthly income to determine if your child will qualify. If you are married, or if you have other children, your yearly income limit will be higher. For example, a single parent with one child can only earn about $36,000, but a family of 5 can earn around $50,000. You can see your family’s specific income limit here: https://www.ssa.gov/ssi/text-child-ussi.htm
If you do think your income qualifies, you should call the SSA at 1-800-772-1213 to discuss your options and schedule an appointment to apply. You’ll unfortunately need to apply in person, but there are over 1300 SSA offices across the country to help you do so.
If you are receiving your decision by mail does that mean a denial?
In reply to If you are receiving your by Anonymous (not verified)
Hi there,
The way the SSA sends the decision letter does not indicate whether it's an approval or denial.
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